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Data security issue when using cloud computing #73

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jingcruk opened this issue Jan 7, 2019 · 2 comments
Open

Data security issue when using cloud computing #73

jingcruk opened this issue Jan 7, 2019 · 2 comments
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@jingcruk
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jingcruk commented Jan 7, 2019

Dear all,

I think it is important to mention that one data protection issue in the "disadvantage" section here:

https://datacarpentry.org/cloud-genomics/01-why-cloud-computing/index.html

People need to be aware that some genomics data, e.g. individual patients data, and large consortium databases including TCGA and ICGA, are protected for the privacy of those individuals involved. Anyone who wants to submit these types of data to be analyzed through Cloud Computing, need to check for the permission for the data security reason.

Thanks,

Jing

@ACharbonneau
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We should have some discussion of data restrictions, but I'm not sure it belongs in the disadvantage list. Amazon, for instance, has done a lot of work to get some of their services approved for use with restricted human data, and with the right settings can be used for dbGAP and similar. There's a lot of nuance in what platforms can be used, and for what kind of data, with which restrictions.

I think we would want a longer discussion of it here: https://datacarpentry.org/cloud-genomics/05-which-cloud/index.html with the caveat that there's no way we can cover every case.

@ErinBecker ErinBecker added the help wanted Looking for Contributors label Mar 18, 2019
nicjar added a commit to nicjar/cloud-genomics that referenced this issue Apr 25, 2019
This is in response to datacarpentry#73
Added a general paragraph about human data and the need to be aware of any ethical and legal requirements when working with human genomic data.
@nicjar
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nicjar commented Apr 25, 2019

Here's a suggestion for an addition about human data and security: #84

@ErinBecker ErinBecker added this to the June 2019 release milestone May 14, 2019
zkamvar pushed a commit that referenced this issue May 4, 2023
This is in response to #73
Added a general paragraph about human data and the need to be aware of any ethical and legal requirements when working with human genomic data.
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